Undiagnosed and FED UP

How many of us live with an undiagnosed condition? Day in and day out we wonder what may be happening to us after being dismissed by yet another medical professional. We keep scheduling different tests and going back to the same doctors, who in return wave their hands, trying to come up with a possible illness name or tell us they don't know what it may be. My personal experience leaves much to be desired, after having wasted my time, thousands of dollars on appointment visits while living in complete darkness of not knowing the nature of my distress. However, I managed to find out the true reason for my physical discomfort after two years of infinite tests and unnecessary procedures. Surprisingly, the diagnosis did not come from a doctor. I will tell you in full detail how I received it, and where it came from. Even though I don't have a way to treat it yet...at least I know what it is. And THAT is a relief of its own...