Utvidet returrett til 31. januar 2025

Lost in the Crowd - Living with Trimethylaminuria

Om Lost in the Crowd - Living with Trimethylaminuria

In Lost in the Crowd - Living with Trimethylaminuria, the author shares her deeply personal story of living with a rare genetic disorder that affects body odor. Trimethylaminuria, or TMAU, is an inherited metabolic disorder that affects an estimated 1 in 200,000 people. The condition causes an excess of trimethylamine (TMA) to be excreted in the sweat, breath, and urine of affected individuals, resulting in a strong fishy odor that can be incredibly isolating and stigmatizing. Through her honest and candid storytelling, the author takes the reader on a journey of self-discovery, navigating the challenges of living with TMAU, finding her own path towards diagnosis and treatment, and ultimately coming to a place of acceptance and self-love. This inspiring and touching memoir is not only a testament to the resilience of the human spirit, but also sheds light on the often-misunderstood world of rare diseases and the individuals and families who are affected by them. If you or someone you love is living with a rare disease or genetic disorder, or if you're simply looking for a powerful and uplifting story of overcoming adversity and finding hope, Lost in the Crowd - Living with Trimethylaminuria is a must-read.

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  • Språk:
  • Engelsk
  • ISBN:
  • 9798394640759
  • Bindende:
  • Paperback
  • Sider:
  • 86
  • Utgitt:
  • 14. mai 2023
  • Dimensjoner:
  • 152x229x5 mm.
  • Vekt:
  • 127 g.
  • BLACK NOVEMBER
Leveringstid: 2-4 uker
Forventet levering: 20. desember 2024

Beskrivelse av Lost in the Crowd - Living with Trimethylaminuria

In Lost in the Crowd - Living with Trimethylaminuria, the author shares her deeply personal story of living with a rare genetic disorder that affects body odor. Trimethylaminuria, or TMAU, is an inherited metabolic disorder that affects an estimated 1 in 200,000 people. The condition causes an excess of trimethylamine (TMA) to be excreted in the sweat, breath, and urine of affected individuals, resulting in a strong fishy odor that can be incredibly isolating and stigmatizing.
Through her honest and candid storytelling, the author takes the reader on a journey of self-discovery, navigating the challenges of living with TMAU, finding her own path towards diagnosis and treatment, and ultimately coming to a place of acceptance and self-love. This inspiring and touching memoir is not only a testament to the resilience of the human spirit, but also sheds light on the often-misunderstood world of rare diseases and the individuals and families who are affected by them.
If you or someone you love is living with a rare disease or genetic disorder, or if you're simply looking for a powerful and uplifting story of overcoming adversity and finding hope, Lost in the Crowd - Living with Trimethylaminuria is a must-read.

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