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Award-winning novelist and poet Gayle Brandeis's wrenching memoir of her complicated family history and her mother's suicideGayle Brandeis's mother disappeared just after Gayle gave birth to her youngest child. Several days later, her body was found: she had hanged herself in the utility closet of a Pasadena parking garage. In this searing, formally inventive memoir, Gayle describes the dissonance between being a new mother, a sweet-smelling infant at her chest, and a grieving daughter trying to piece together what happened, who her mother was, and all she had and hadn't understood about her.Around the time of her suicide, Gayle's mother had been working on a documentary about the rare illnesses she thought ravaged her family: porphyria and Ehlers-Danlos syndrome. In The Art of Misdiagnosis, taking its title from her mother's documentary, Gayle braids together her own narration of the charged weeks surrounding her mother's suicide, transcripts of her mother's documentary, research into delusional and factitious disorders, and Gayle's own experience with misdiagnosis and illness (both fabricated and real). Slowly and expertly, The Art of Misdiagnosis peels back the complicated layers of deception and complicity, of physical and mental illness in Gayle's family, to show how she and her mother had misdiagnosed one another.Gayle's memoir is both a compelling search into the mystery of one's own family and a life-affirming story of the relief discovered through breaking familial and personal silences. Written by a gifted stylist, The Art of Misdiagnosis delves into the tangled mysteries of disease, mental illness, and suicide and comes out the other side with grace.

The story of low-wage workers rising up around the world to demand respect and a living wage.Tracing a new labor movement sparked and sustained by low-wage workers from across the globe, “We Are All Fast-Food Workers Now” is an urgent, illuminating look at globalization as seen through the eyes of workers-activists: small farmers, fast-food servers, retail workers, hotel housekeepers, home-healthcare aides, airport workers, and adjunct professors who are fighting for respect, safety, and a living wage. With original photographs by Liz Cooke and drawing on interviews with activists in many US cities and countries around the world, including Bangladesh, Cambodia, Mexico, South Africa, and the Philippines, it features stories of resistance and rebellion, as well as reflections on hope and change as it rises from the bottom up.

How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomesHidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers.Paradoxically, comprehensive electronic files for patient treatmentthe reason medical data exists in the first placeremain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally.It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world's dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich's hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits.Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it's our data.

Overturns common misconceptions about charter schools, school "choice," standardized tests, common core curriculum, and teacher evaluations.Three distinguished educators, scholars, and activists flip the script on many enduring and popular myths about teachers, teachers' unions, and education that permeate our culture. By unpacking these myths, and underscoring the necessity of strong and vital public schools as a common good, the authors challenge readers--whether parents, community members, policy makers, union activists, or educators themselves--to rethink their assumptions.

A personal and moral inquiry into the crime we do our best to ignore: the rape of adult menWhen Raymond M. Douglas was an eighteen-year-old living in Europe, he was brutally raped by a Catholic priest. He eventually moved to the United States and became a highly regarded historian, writing with great care about the violent expulsion of Germans from Eastern Europe after the Second World War, and parsing the complicated moral questions of these actions. But until now, Douglas has been silent about his own experience of trauma.In On Being Raped, Douglas recounts this painful event and his later attempts to seek help to lay bare the physical and psychological trauma of a crime we still don't openly discuss: the rape of adult men by men. With eloquence and passion, he examines the requirements society implicitly places upon men who are victims of rape, examines the reasons for our resounding silence around this issue, and reveals how alarmingly prevalent this kind of sexual violence truly is.An insightful and sensitive analysis of a type of bodily violation that we either joke about or ignore, On Being Raped promises to open an important dialogue about male rape and what needs to be done to provide adequate services and support for victims. ';But before that can happen,' writes Douglas, ';men who have been raped will have to come out of the shadows...A start has to be made somewhere. This is my attempt at one.'

Groundbreaking look at slaves as commodities through every phase of life, from birth to death and beyond, in early AmericaIn life and in death, slaves were commodities, their monetary value assigned based on their age, gender, health, and the demands of the market. The Price for Their Pound of Flesh is the first book to explore the economic value of enslaved people through every phase of their livesincluding preconception, infancy, childhood, adolescence, adulthood, the senior years, and deathin the early American domestic slave trade. Covering the full ';life cycle,' historian Daina Ramey Berry shows the lengths to which enslavers would go to maximize profits and protect their investments. Illuminating ';ghost values' or the prices placed on dead enslaved people, Berry explores the little-known domestic cadaver trade and traces the illicit sales of dead bodies to medical schools.This book is the culmination of more than ten years of Berry's exhaustive research on enslaved values, drawing on data unearthed from sources such as slave-trading records, insurance policies, cemetery records, and life insurance policies. Writing with sensitivity and depth, she resurrects the voices of the enslaved and provides a rare window into enslaved peoples' experiences and thoughts, revealing how enslaved people recalled and responded to being appraised, bartered, and sold throughout the course of their lives. Reaching out from these pages, they compel the reader to bear witness to their stories, to see them as human beings, not merely commodities.A profoundly humane look at an inhumane institution, The Price for Their Pound of Flesh will have a major impact how we think about slavery, reparations, capitalism, nineteenth-century medical education, and the value of life and death.Winner of the 2018 Hamilton Book Award from the University Coop (Austin, TX)Winner of the 2018 Society for Historians of the Early American Republic Book Prize (SHEAR)Winner of the 2018 Phillis Wheatley Literary Award, from the Sons and Daughters of the US Middle PassageFinalist for the 2018 Frederick Douglass Book Prize from Yale University's Gilder Lehrman Center for the Study of Slavery, Resistance, and Abolition

A collection of poems exploring questions of religious and linguistic authority, from medieval England to contemporary AppalachiaA National Poetry Series winner, selected and with a foreword by Tracy K. SmithThe poems in Scriptorium are primarily concerned with questions of religious authority. The medieval scriptorium, the central image of the collection, stands for that authority but also for its subversion; it is both a place where religious ideas are codified in writing and a place where an individual scribe might, with a sly movement of the pen, express unorthodox religious thoughts and experiences. In addition to exploring the ways language is used, or abused, to claim religious authority, Scriptorium also addresses the authority of the vernacular in various time periods and places, particularly in the Appalachian slang of the author's East Tennessee upbringing. Throughout Scriptorium, the historical mingles with the personal: poems about medieval art, theology, and verse share space with poems that chronicle personal struggles with faith and doubt.

The true story of an immigrant's murder that turned a quaint village on the Long Island shore into ground zero in the war on immigration In November of 2008, Marcelo Lucero, a thirty-seven-year-old undocumented Ecuadorean immigrant, was brutally attacked and murdered by a group of teenagers as he walked the streets of Patchogue, a quiet Long Island town. The teenaged attackers were out "e;hunting for beaners,"e; their slur for Latinos, and Lucero was to become another victim of the anti-immigration fever spreading in the United States. But in death, Lucero's name became a symbol of everything that was wrong with our broken immigration system: porous borders, lax law enforcement, and the rise of bigotry. With a strong commitment to telling all sides of the story, journalist Mirta Ojito unravels the engrossing narrative with objectivity and insight, providing an invaluable peephole into one of America's most pressing issues.

A lyrical literary memoir that explores the exhilarating, discomforting, and ultimately healing process of Polish-Jewish reconciliation taking place in Poland today Although an estimated 80 percent of American Jews are of Polish descent, many in the postwar generation and those born later know little about their families' connection to their ancestral home. In fact, many Jews continue to think of Poland as a bastion of anti-Semitism, since nearly the entire population of Polish Jewry was killed in the Holocaust. The reality is more complex: although German-occupied Poland was the site of great persecution towards Jews, it was also the epicenter of European Jewish life for centuries. Louise Steinman sets out to examine the burgeoning Polish-Jewish reconciliation movement through the lens of her own family's history, joining the ranks of Jews of Polish descent who are confronting both Poland's heroism and occupation-afflicted atrocities, and who are seeking to reconnect with their families' Polish roots

An inspiring story of doctors who changed the health care of an African nationDr. Dilan Ellegala arrives in Tanzania, shocked to find the entire country has just three brain surgeons for its population of forty-two million. Haydom Lutheran Hospital lacks even the most basic surgical tools, not even a saw to open a patient's skull. Here, people with head injuries or brain tumors heal on their own or die. When confronted with a villager suffering from a severe head trauma, Dilan buys a tree saw from a farmer, sterilizes it, and then uses it to save the man's life.Yet Dilan realizes that there are far too many neurosurgery patients for one person to save, and of course he will soon be leaving Tanzania. He needs to teach someone his skills. He identifies a potential student in Emmanuel Mayegga, a stubborn assistant medical officer who grew up in a mud hut. Though Mayegga has no medical degree, Dilan sees that Mayegga has the dexterity, intelligence, and determination to do brain surgery. Over six months, he teaches Mayegga how to remove tumors and treat hydrocephalus. And then, perhaps more important, Dilan teaches Mayegga how to pass on his newfound skills. Mayegga teaches a second Tanzanian, who teaches a third. It's a case of teach-a-man-to-fish meets brain surgery.As he guides these Tanzanians to do things they never thought possible, Dilan challenges the Western medical establishment to do more than send vacationing doctors on short-term medical missions. He discovers solutions that could transform health care for two billion people across the world.A Surgeon in the Village is the incredible and riveting account of one man's push to ';train-forward'to change our approach to aid and medical training before more lives are needlessly lost. His story is a testament to the transformational power of teaching and the ever-present potential for change. As many as seventeen million people die every year because of a shortage of surgeons, more than die from AIDS, malaria, and tuberculosis combined. Dilan Ellegala and other visionaries are boldly proposing ways of saving lives.

A generation before Brown v. Board of Education struck down America's ';separate but equal' doctrine, one Chinese family and an eccentric Mississippi lawyer fought for desegregation in one of the greatest legal battles never told.On September 15, 1924, Martha Lum and her older sister Berda were barred from attending middle school in Rosedale, Mississippi. The girls were Chinese American and considered by the school to be ';colored'; the school was for whites. This event would lead to the first US Supreme Court case to challenge the constitutionality of racial segregation in Southern public schools, an astonishing thirty years before the landmark Brown v. Board of Education decision.Unearthing one of the greatest stories never told, journalist Adrienne Berard recounts how three unlikely heroes sought to shape a new South. A poor immigrant from southern China, Jeu Gong Lum came to America with the hope of a better future for his family. Unassuming yet boldly determined, his daughter Martha would inhabit that future and become the face of the fight to integrate schools. Earl Brewer, their lawyer and staunch ally, was once a millionaire and governor of Mississippi. When he took the family's case, Brewer was both bankrupt and a political pariaha man with nothing left to lose.By confronting the ';separate but equal' doctrine, the Lum family fought for the right to educate Chinese Americans in the white schools of the Jim Crow South. Using their groundbreaking lawsuit as a compass, Berard depicts the complicated condition of racial otherness in rural Southern society.In a sweeping narrative that is both epic and intimate, Water Tossing Boulders evokes a time and place previously defined by black and white, a time and place that, until now, has never been viewed through the eyes of a forgotten third race. In vivid prose, the Mississippi Delta, an empire of cotton and a bastion of slavery, is reimagined to reveal the experiences of a lost immigrant community. Through extensive research in historical documents and family correspondence, Berard illuminates a vital, forgotten chapter of America's past and uncovers the powerful journey of an oppressed people in their struggle for equality.

How charter schools have taken hold in three cities—and why parents, teachers, and community members are fighting backCharter schools once promised a path towards educational equity, but as the authors of this powerful volume show, market-driven education reforms have instead boldly reestablished a tiered public school system that segregates students by race and class. Examining the rise of charters in New Orleans, Chicago, and New York, authors Raynard Sanders, David Stovall, and Terrenda White show how charters—private institutions, usually set in poor or working-class African American and Latinx communities—promote competition instead of collaboration and are driven chiefly by financial interests. Sanders, Stovall, and White also reveal how corporate charters position themselves as “public” to secure tax money but exploit their private status to hide data about enrollment and salaries, using misleading information to promote false narratives of student success.In addition to showing how charter school expansion can deprive students of a quality education, the authors document several other lasting consequences of charter school expansion:    • the displacement of experienced African American teachers    • the rise of a rigid, militarized pedagogy such as SLANT    • the purposeful starvation of district schools    • and the loss of community control and oversight A revealing and illuminating look at one of the greatest threats to public education, Twenty-First-Century Jim Crow Schools explores how charter schools have shaped the educational landscape and why parents, teachers, and community members are fighting back.

The unexpected story of how genetic testing is affecting race in AmericaWe know DNA is a master key that unlocks medical and forensic secrets, but its genealogical life is both revelatory and endlessly fascinating. Tracing genealogy is now the second-most popular hobby amongst Americans, as well as the second-most visited online category. This billion-dollar industry has spawned popular television shows, websites, and Internet communities, and a booming heritage tourism circuit.The tsunami of interest in genetic ancestry tracing from the African American community has been especially overwhelming. In The Social Life of DNA, Alondra Nelson takes us on an unprecedented journey into how the double helix has wound its way into the heart of the most urgent contemporary social issues around race.For over a decade, Nelson has deeply studied this phenomenon. Artfully weaving together keenly observed interactions with root-seekers alongside illuminating historical details and revealing personal narrative, she shows that genetic genealogy is a new tool for addressing old and enduring issues. In The Social Life of DNA, she explains how these cutting-edge DNA-based techniques are being used in myriad ways, including grappling with the unfinished business of slavery: to foster reconciliation, to establish ties with African ancestral homelands, to rethink and sometimes alter citizenship, and to make legal claims for slavery reparations specifically based on ancestry.Nelson incisively shows that DNA is a portal to the past that yields insight for the present and future, shining a light on social traumas and historical injustices that still resonate today. Science can be a crucial ally to activism to spur social change and transform twenty-first-century racial politics. But Nelson warns her readers to be discerning: for the social repair we seek can't be found in even the most sophisticated science. Engrossing and highly original, The Social Life of DNA is a must-read for anyone interested in race, science, history and how our reckoning with the past may help us to chart a more just course for tomorrow.

An optimistic book for Americans who are asking, in the wake of Trump's victory, What do we do now? The answer: We need to organize and fight to protect and expand our democracy.Americans are distraught as tightly held economic and political power drowns out their voices and values. Legendary Diet for a Small Planet author Frances Moore Lappe and organizer-scholar Adam Eichen offer a fresh, surprising response to this core crisis. This intergenerational duo opens with an essential truth: It's not the magnitude of a challenge that crushes the human spirit. It's feeling powerlessin this case, fearing that to stand up for democracy is futile. It's not, Lappe and Eichen argue. With riveting stories and little-known evidence, they demystify how we got here, exposing the well-orchestrated effort that has robbed Americans of their rightful power. But at the heart of this unique book are solutions. Even in this divisive time, Americans are uniting across causes and ideologies to create a ';canopy of hope' the authors call the Democracy Movement. In this invigorating ';movement of movements,' millions of Americans are leaving despair behind as they push for and achieve historic change. The movement and democracy itself are vital to us as citizens and fulfill human needsfor power, meaning, and connectionessential to our thriving. In this timely and necessary book, Lappe and Eichen offer proof that courage is contagious in the daring fight for democracy.

Essays on Latinx and Caribbean identity and on globalization by renowned women writers, including Julia Alvarez, Edwidge Danticat, and Jamaica KincaidWomen Writing Resistance: Essays on Latin America and the Caribbean gathers the voices of sixteen acclaimed writer-activists for a one-of-a-kind collection. Through poetry and essays, writers from the Anglophone, Hispanic, and Francophone Caribbean, including Puertorriqueas and Cubanas, grapple with their hybrid American political identities. Gloria Anzalda, the founder of Chicana queer theory; Rigoberta Mench, the first Indigenous person to win a Nobel Peace Prize; and Michelle Cliff, a searing and poignant chronicler of colonialism and racism, among many others, highlight how women can collaborate across class, race, and nationality to lead a new wave of resistance against neoliberalism, patriarchy, state terrorism, and white supremacy.